As I continue to do research on Ethan's symptoms, I keep coming across the following diseases: crohn's disease, celiac, chronic pancreatitis, gastric or small bowel resections, fistulas, colitis & biliary obstruction AND CYSTIC FIBROSIS.
Here is an excerpt that just shocked me:
CF is caused by a mutation in the gene cystic fibrosis transmembrane conductance regulator (CFTR). The product of this gene is a chloride ion channel important in creating sweat, digestive juices and mucus. Although most people without CF have two working copies (alleles) of the CFTR gene, only one is needed to prevent cystic fibrosis. CF develops when neither allele can produce a functional CFTR protein. Therefore, CF is considered an autosomal recessive disease.
I have noticed since Ethan was a baby that he just can't seem to sweat and clearly he has issues with digestive issues and more recently sinus issues (assumed it was just allergies). Mind you, he does not have the serious pulmonary issues associated with this condition... but I sure found the info about sweating interesting.
ARGH... that's the scary thing about research... so many symptoms can be common but I literally stopped breathing when I read the comment about sweating. That has always been an issue for Ethan. Keep praying! We'll find the answers, I have no doubt God intends for us to find the answers. Thank you so much for your help!