We are excited to work with One Degree Organic in providing them with our oil sunflowers to be used in their consumer products. They flew out to interview Duane and get a few pics of the family. The goal being that consumers will be able to scan their product barcode and access videos of the farmers who contributed to one or more of the ingredients. A really awesome concept that brings consumers back in relationship with their food.
Hope you all enjoy a little snippet into what my husband, Duane, does with every ounce of his moral fibre!
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Wednesday, 6 March 2013
Tuesday, 5 March 2013
Sunday, 17 February 2013
Weekly Menu Plan
A while back, I had created a weekly menu plan template for the sake of keeping my sanity! I couldn't stand those 4:00 pm frantic moments of "what on earth am I going to make for supper?" only to have limited options because I didn't thaw any meat, etc... Out with the old way and in with the new, was my logic when I'd finally had enough.
I created this template and then figured out a four-week menu plan with associated grocery lists to simplify our crazy life. It worked great for almost a year but we got a little tired of the same meals and I've resolved that I will probably have a six-week rotating menu plan for winter and a different one for summer. After all, hamburgers, kabobs, and salads are so much more enjoyable in summer while soups, stews and casseroles are so much better in winter!
I then place my menu plan in protective sleeves along with photocopies of the recipes I'll need for the menu plan. That way, if I'm away from home and cannot return in time to get started on a recipe, either Antoinette or Melina can grab the menu plan, find the exact recipe for that day and get started on it for me. You can get loose leaf rings to keep these weekly plans together and they hang beautifully on cupboard knobs! Those protective sheets ensure that splashes and sloshes don't ruin a classic/favourite!
I've had many friends ask for a copy of this template and I've decided if it could bless our home, if it could bless our friends' homes, I pray it can bless your home, too. I've chosen a kid-friendly font for added fun. That which our Heavenly Father has helped me to create (as simple as it may be), I share it with you!
Happy cooking, happy organizing and happy menu planning!
PS - this is my first time trying to add a PDF document to the blog, so if it's glitchy, let me know and I'll do my best to fix it. Thank you!
Rita's Weekly Menu Plan Template - Blank if you have a google account or try clicking here if you have a Scribd account (easily registered via facebook login). Otherwise, I just can't seem to figure out how to upload a simple pdf document with a simple "print" to my blog!
I created this template and then figured out a four-week menu plan with associated grocery lists to simplify our crazy life. It worked great for almost a year but we got a little tired of the same meals and I've resolved that I will probably have a six-week rotating menu plan for winter and a different one for summer. After all, hamburgers, kabobs, and salads are so much more enjoyable in summer while soups, stews and casseroles are so much better in winter!
I then place my menu plan in protective sleeves along with photocopies of the recipes I'll need for the menu plan. That way, if I'm away from home and cannot return in time to get started on a recipe, either Antoinette or Melina can grab the menu plan, find the exact recipe for that day and get started on it for me. You can get loose leaf rings to keep these weekly plans together and they hang beautifully on cupboard knobs! Those protective sheets ensure that splashes and sloshes don't ruin a classic/favourite!
I've had many friends ask for a copy of this template and I've decided if it could bless our home, if it could bless our friends' homes, I pray it can bless your home, too. I've chosen a kid-friendly font for added fun. That which our Heavenly Father has helped me to create (as simple as it may be), I share it with you!
Happy cooking, happy organizing and happy menu planning!
PS - this is my first time trying to add a PDF document to the blog, so if it's glitchy, let me know and I'll do my best to fix it. Thank you!
Rita's Weekly Menu Plan Template - Blank if you have a google account or try clicking here if you have a Scribd account (easily registered via facebook login). Otherwise, I just can't seem to figure out how to upload a simple pdf document with a simple "print" to my blog!
Saturday, 9 February 2013
Sivana dancing to Melina's rap music
Not sure if this will work or not, but I just had to share what Melina captured of Sivana dancing to christian rap. At one point, she tries to get on the ground to breakdance the way they are in the video... too funny!
Friday, 8 February 2013
A Driver for the Driver?
Melina had a scheduled surgical appointment this morning to get her wisdom teeth taken out. It would require being put under which means a designated driver. So she was put under in the chair and the whole procedure took less than an hour. Everything was ticketeeboo... I was sipping on my coffee trying to catch up with emails on my iPhone and then they called me in to see her and discuss care and maintenance over the next few days.
Well, I'm assuming you all know me well enough by now to know that I have a VERY active imagination fuelled by super mama-bear instincts so when the dentist stops me before walking into Mina's recovery area to say "there was a mild complication" you can imagine the self-control required to ask calmly "what do you mean?" When really in my mind I am grabbing him by the neck and bringing him nice and close to my face as I growl slowly "what did you do to my baby?"
The mild complication meant that with the pulling and stretching on her mouth, it caused the bottom left corner of her mouth to tear open. He let me see her and as she was coming to, her eyes were rolling and looking at me not quite understanding what was going on.
Mama bear instincts heightened over time!!
And then she tried to speak but with her mouth full of gauze, it sounded more like "ma-nana-ma-ma-nana?" As she spoke, the tear on the side of her mouth was pulling open and I started to feel very warm. And then I started to break into a sweat.
You've got to be kidding me! I've given birth six times including two C-sections, watched Isabel's eye laser procedure and THIS is what's going to make me faint?
The nurse was watching me closely and I asked "is it normal to feel queasy?" To which the doctor and nurse grabbed me and laid me down on the floor with my feet in the air beside Melina's chair! "I thought I noticed the color drain from your face" was all the nurse said. Are you serious? There's my baby girl bobbing her head around and mouth bleeding and I'm on the floor? This is NOT what's supposed to happen!
"Good grief, I am so sorry!" was all I could keep saying. The nurse smiled and said "You wouldn't believe how often this happens. Last time I had a 6'2 father faint after his daughter's procedure and I was the one who had to catch him! Ironically, it's usually the drivers who faint and not the patients."
Melina in all of her grogginess managed to eek out "Do I look like frankenstein or something? Why are you on the floor?"
"I figured this was a better way to talk with you." Watching her try to speak again and her sore opening up made me get dizzy again so I added "how about you stop talking for now, ok?"
"Do we need to call Duane to pick us up?"
NO! Good grief this was embarrassing enough! And that's saying a lot from this gal who has little to no boundaries nor dignity to go with it! So there you have it, my dears... should you know of anyone bringing in their child for a wisdom-teeth removal procedure, be sure to advise them to bring TWO drivers! In the meantime, please keep my baby girl in your prayers as she recovers.
Well, I'm assuming you all know me well enough by now to know that I have a VERY active imagination fuelled by super mama-bear instincts so when the dentist stops me before walking into Mina's recovery area to say "there was a mild complication" you can imagine the self-control required to ask calmly "what do you mean?" When really in my mind I am grabbing him by the neck and bringing him nice and close to my face as I growl slowly "what did you do to my baby?"
The mild complication meant that with the pulling and stretching on her mouth, it caused the bottom left corner of her mouth to tear open. He let me see her and as she was coming to, her eyes were rolling and looking at me not quite understanding what was going on.
Mama bear instincts heightened over time!!
And then she tried to speak but with her mouth full of gauze, it sounded more like "ma-nana-ma-ma-nana?" As she spoke, the tear on the side of her mouth was pulling open and I started to feel very warm. And then I started to break into a sweat.
You've got to be kidding me! I've given birth six times including two C-sections, watched Isabel's eye laser procedure and THIS is what's going to make me faint?
The nurse was watching me closely and I asked "is it normal to feel queasy?" To which the doctor and nurse grabbed me and laid me down on the floor with my feet in the air beside Melina's chair! "I thought I noticed the color drain from your face" was all the nurse said. Are you serious? There's my baby girl bobbing her head around and mouth bleeding and I'm on the floor? This is NOT what's supposed to happen!
"Good grief, I am so sorry!" was all I could keep saying. The nurse smiled and said "You wouldn't believe how often this happens. Last time I had a 6'2 father faint after his daughter's procedure and I was the one who had to catch him! Ironically, it's usually the drivers who faint and not the patients."
Melina in all of her grogginess managed to eek out "Do I look like frankenstein or something? Why are you on the floor?"
"I figured this was a better way to talk with you." Watching her try to speak again and her sore opening up made me get dizzy again so I added "how about you stop talking for now, ok?"
"Do we need to call Duane to pick us up?"
NO! Good grief this was embarrassing enough! And that's saying a lot from this gal who has little to no boundaries nor dignity to go with it! So there you have it, my dears... should you know of anyone bringing in their child for a wisdom-teeth removal procedure, be sure to advise them to bring TWO drivers! In the meantime, please keep my baby girl in your prayers as she recovers.
Friday, 4 January 2013
Music to my ears
The sun has set, the shofar has been blown, the candles were lit and a fresh loaf of challah bread is waiting tantalizingly on the table next to some butter... everything in place to welcome another Sabbath. I sit and type the sounds of this weekly slice of heaven...
Melina is behind me on the iMac learning to play her ukalale (I think that makes her ultra awesomely cool!). The strings are being pluked and the sound resonates a merriment that makes me smile. Honestly, who can be grumpy EVER when a ukalele is being played?
Contrary to the happiness of the ukalale is the sound of Sivana's occasional whines as she continues to recover from nearly five days of high fevers. But she squeals suddenly in delight as her brother goes racing by using Avalyn's baby walker as a skateboard!
Ukalale, sudden squeals of joy, wheels racing by and the occasional "YES!" from Ethan as he skids around the corner (sigh)... Duane's laughter as he realizes what our son is doing... a laughter that sounds somewhat triumphant like he knows exactly whatever is running through Ethan's veins that makes him try dare-devil tricks with even simple baby equipment! And now Sivana is crying because her brother decided to skid over her toes! Papa Bear to the rescue.
I hear Isabel's movie in the background, Finding Nemo, (one of her alltime favs) and I can imagine that Anika is sitting next to her. She is also recovering from five or six days of high fevers. She has lost quite a bit of weight but her energy seems to be starting to come back today.
The baby monitor has gone quiet as Avalyn finally settles into her last nap of the day.
Antoinette is like a ninja weaving in and out of the chaos picking up after the kids, wiping noses (but only the kids'!) and making sure everything is running in order... or as much order as can be found in this house at this stage of our lives.
And then there is the plunking sounds of my fingers on the keyboard. I am using Duane's PC which is next to my iMac (which is being used by my ukalale-plucking daughter). And now Sivana is trying to sing with her strumming to "Somewhere over the rainbow."
This is my pot of gold... right here, right now.
It's been an incredibly long week... nothing accomplished other than holding one or two kids at a time taking temperatures, placing them in cooling baths, trying to make meals, waking up in the night to Sivana vomitting several nights in a row. May this Sabbath greet us with the holiness He promised us at Creation... its sanctification bringing us reprieve from our labour both physically, emotionally and mentaly. A time to spend together as family, singing, praying, studying God's word and growing stronger as a family.
My favourite day of the week.
May this Sabbath greet you all out there ready for a reprieve from your own labours. May you find peace and rest until tomorrow's sundown and beyond. May you feel Him reaching out to you, whether consciously or unconsciously, and may you meet with Him like a promised weekly date-night! :) And may you find joy in His love for you, for His creation, because as He saw it, "It is good." God bless you all out there.
Melina is behind me on the iMac learning to play her ukalale (I think that makes her ultra awesomely cool!). The strings are being pluked and the sound resonates a merriment that makes me smile. Honestly, who can be grumpy EVER when a ukalele is being played?
Contrary to the happiness of the ukalale is the sound of Sivana's occasional whines as she continues to recover from nearly five days of high fevers. But she squeals suddenly in delight as her brother goes racing by using Avalyn's baby walker as a skateboard!
Ukalale, sudden squeals of joy, wheels racing by and the occasional "YES!" from Ethan as he skids around the corner (sigh)... Duane's laughter as he realizes what our son is doing... a laughter that sounds somewhat triumphant like he knows exactly whatever is running through Ethan's veins that makes him try dare-devil tricks with even simple baby equipment! And now Sivana is crying because her brother decided to skid over her toes! Papa Bear to the rescue.
I hear Isabel's movie in the background, Finding Nemo, (one of her alltime favs) and I can imagine that Anika is sitting next to her. She is also recovering from five or six days of high fevers. She has lost quite a bit of weight but her energy seems to be starting to come back today.
The baby monitor has gone quiet as Avalyn finally settles into her last nap of the day.
Antoinette is like a ninja weaving in and out of the chaos picking up after the kids, wiping noses (but only the kids'!) and making sure everything is running in order... or as much order as can be found in this house at this stage of our lives.
And then there is the plunking sounds of my fingers on the keyboard. I am using Duane's PC which is next to my iMac (which is being used by my ukalale-plucking daughter). And now Sivana is trying to sing with her strumming to "Somewhere over the rainbow."
This is my pot of gold... right here, right now.
It's been an incredibly long week... nothing accomplished other than holding one or two kids at a time taking temperatures, placing them in cooling baths, trying to make meals, waking up in the night to Sivana vomitting several nights in a row. May this Sabbath greet us with the holiness He promised us at Creation... its sanctification bringing us reprieve from our labour both physically, emotionally and mentaly. A time to spend together as family, singing, praying, studying God's word and growing stronger as a family.
My favourite day of the week.
May this Sabbath greet you all out there ready for a reprieve from your own labours. May you find peace and rest until tomorrow's sundown and beyond. May you feel Him reaching out to you, whether consciously or unconsciously, and may you meet with Him like a promised weekly date-night! :) And may you find joy in His love for you, for His creation, because as He saw it, "It is good." God bless you all out there.
Wednesday, 2 January 2013
Set Apart
"Before I formed you in the womb I knew you, before you were born I set you apart"
Jeremiah 1:5
We are called to be set apart.
We were called to be set apart before we were born.
But how easy is that? How many of us avoid standing out like the plague? How many of us give anything, do anything to be "just like everyone else?"
Why are we afraid to do what we were created to do?
The other day, Ethan wanted to hold Avalyn on the rocking chair. From before she was born, I would "speak" for Avalyn using a high pitched kid's voice so the kids could "talk" to her and she could answer them. (It's a great way to find out what the kids are really thinking and even more fun to have them feel that the baby is already apart of what's going on long before he/she is out of the womb). Lately, because everything that comes within Avalyn's reach goes straight to her mouth, when she "talks" to the kids, it involves "Oooh, I like that... but can I EAT it?"
The kids find this hilarious. If they try to show her a picture they drew, I'll say on behalf of Avalyn "Oh, I like the blue and the purple... can you bring it closer so I can EAT it?" They laugh and say "Avalyn, you can't eat it!"
So Ethan was happily holding Avalyn and she just LOVES her big brother. I was right there to make sure Avalyn sat safely on his lap and the conversation began...
"Oh Ethan, I like your shirt."
"Thanks, Avalyn, I like it too because it has red. I like red."
"Yeah, red is nice. But can I eat it?"
(giggle) "No, Avalyn, you can't eat red and you can't eat my shirt. But someday you'll be bigger and you'll be able to eat real food."
"Can i eat food like you, Ethan?"
"Well, you'll be able to eat food but not the food I have to eat. My food is different."
"Why is your food different, Ethan?"
"Well, God chose to make me different so I have to eat food that's different from everyone else's."
(GULP)... At this point, I'm wondering who this is more therapeutic for! Figured we'd keep going with this...
"God made you different? Do you like being made different, Ethan?"
Here there was a slight pause as I watched my four year old son ponder the question. And then he looked back at his little sister on his lap and said earnestly:
"Yes, I like that He made me different. But sometimes it's lonely."
Well, I'm sure you can imagine the tears that welled up in my eyes and I just couldn't play the game anymore. I hugged my son and said "Thank you, Ethan for being willing to be made different for God. You are a very special boy and I love you so much. I'm so sorry it feels lonely sometimes. We'll always do our best to be there for you. And I hope that even when you feel lonely, that you remember that God is always with you."
My beloved dear ones... is this the faith of a child that Jesus spoke of? Is this true willingness of heart to surrender to God's will even when it means walking a lonely road? What does this say when a child can accept a road set a part for the sake of BEING WITH God?
I tell you, I was greatly humbled. I looked at my own life and smiled at the moments of fearlessness where I felt set apart, but alone... but gloriously alone. Alone, not in a way where you are fragile and forgotten, but alone in a way that I would imagine Moses felt when he saw the burning bush and knew that no one else could ever understand this moment. Alone in the way a bird would rise above a set of clouds and feel as though the Creator Himself could see him.
Yet how many of us fear being alone? Perhaps we fear that very feeling of being completely exposed to Him?
But He has known you since before He formed you. Somewhere in time, as God rules it, there was a moment between just you and Him. It was sacred. You were set apart in that moment. I share this post with you, not just because what I witnessed between my son and his little sister touched me so deeply, but because I hope it stirs some deep memory from within... so deep you cannot even place your finger on it. I pray it reawakens your confidence in WHO you are and WHAT He has called you to do with your life.
Not to be perfect, but to be His.
Not to be afraid, but to be His light... even if it means standing alone.
My prayer for you tonight is that you find peace in the moment your soul was created... to embrace the moments you felt alone in your life and see if your eyes can look back to see HOW He sought you in those moments. Did you seek Him? Did you find each other? If not, revisit those moments with your arms open to receive Him in your loneliness. Rise above those clouds to where the sun beams embrace you and feel our Father SEE you. I pray you do not seek comfort in hiding among the popularity of mankind, but rather rejoice in the ways you were set apart. In Jesus' name... Amen.
Jeremiah 1:5
We are called to be set apart.
We were called to be set apart before we were born.
But how easy is that? How many of us avoid standing out like the plague? How many of us give anything, do anything to be "just like everyone else?"
Why are we afraid to do what we were created to do?
The other day, Ethan wanted to hold Avalyn on the rocking chair. From before she was born, I would "speak" for Avalyn using a high pitched kid's voice so the kids could "talk" to her and she could answer them. (It's a great way to find out what the kids are really thinking and even more fun to have them feel that the baby is already apart of what's going on long before he/she is out of the womb). Lately, because everything that comes within Avalyn's reach goes straight to her mouth, when she "talks" to the kids, it involves "Oooh, I like that... but can I EAT it?"
The kids find this hilarious. If they try to show her a picture they drew, I'll say on behalf of Avalyn "Oh, I like the blue and the purple... can you bring it closer so I can EAT it?" They laugh and say "Avalyn, you can't eat it!"
So Ethan was happily holding Avalyn and she just LOVES her big brother. I was right there to make sure Avalyn sat safely on his lap and the conversation began...
"Oh Ethan, I like your shirt."
"Yeah, red is nice. But can I eat it?"
"Can i eat food like you, Ethan?"
"Well, you'll be able to eat food but not the food I have to eat. My food is different."
"Why is your food different, Ethan?"
"Well, God chose to make me different so I have to eat food that's different from everyone else's."
"God made you different? Do you like being made different, Ethan?"
Here there was a slight pause as I watched my four year old son ponder the question. And then he looked back at his little sister on his lap and said earnestly:
"Yes, I like that He made me different. But sometimes it's lonely."
Well, I'm sure you can imagine the tears that welled up in my eyes and I just couldn't play the game anymore. I hugged my son and said "Thank you, Ethan for being willing to be made different for God. You are a very special boy and I love you so much. I'm so sorry it feels lonely sometimes. We'll always do our best to be there for you. And I hope that even when you feel lonely, that you remember that God is always with you."
My beloved dear ones... is this the faith of a child that Jesus spoke of? Is this true willingness of heart to surrender to God's will even when it means walking a lonely road? What does this say when a child can accept a road set a part for the sake of BEING WITH God?
I tell you, I was greatly humbled. I looked at my own life and smiled at the moments of fearlessness where I felt set apart, but alone... but gloriously alone. Alone, not in a way where you are fragile and forgotten, but alone in a way that I would imagine Moses felt when he saw the burning bush and knew that no one else could ever understand this moment. Alone in the way a bird would rise above a set of clouds and feel as though the Creator Himself could see him.
Yet how many of us fear being alone? Perhaps we fear that very feeling of being completely exposed to Him?
But He has known you since before He formed you. Somewhere in time, as God rules it, there was a moment between just you and Him. It was sacred. You were set apart in that moment. I share this post with you, not just because what I witnessed between my son and his little sister touched me so deeply, but because I hope it stirs some deep memory from within... so deep you cannot even place your finger on it. I pray it reawakens your confidence in WHO you are and WHAT He has called you to do with your life.
Not to be perfect, but to be His.
Not to be afraid, but to be His light... even if it means standing alone.
My prayer for you tonight is that you find peace in the moment your soul was created... to embrace the moments you felt alone in your life and see if your eyes can look back to see HOW He sought you in those moments. Did you seek Him? Did you find each other? If not, revisit those moments with your arms open to receive Him in your loneliness. Rise above those clouds to where the sun beams embrace you and feel our Father SEE you. I pray you do not seek comfort in hiding among the popularity of mankind, but rather rejoice in the ways you were set apart. In Jesus' name... Amen.
Sivana's Purple Friends
Beloved family & friends (those known and unknown),
Many of you are parents. Therefore you know the pain of witnessing helplessly your own child's suffering. It is deep, it is solemn, it is humbling. But how does one describe being witness to their child rising above that suffering to rejoice in life? Well, you know me... I am never short on words, so here's my attempt at describing watching our darling Sivana discover the difference in what her God-given ears can hear with the help of some "purple friends".
Sivana's purple hearing aids have opened her to a whole new world! The molds fill the outer ear cavity and the devices themselves loop over the ears. Both the molds and hearing aids are Sivana's favourite colour... Purple.
When the audiologist put them in her ear, Sivana was tolerant (as the audiologist has stuck many different devices in her ears for all the tests performed so this was nothing out of the ordinary). Sivana was sitting on my lap when the audiologist turned the hearing aids on. She then spoke to me and Sivana immediately whipped her head up to look at the lady in surprise. I laughed and she immediately whipped her head around to look at me with just as much surprise. I asked her "Sivana, can you hear mommy?" to which she immediately replied with awe, "yeah!" I signed the following while speaking: "Sivana... Purple friends help your ears to hear. Do you like purple friends?" Again she replied "YEAH!!"
These last few days, she has been singing, playing her iPod game called Starfall which has all the alphabet and their phonemic sound and she has been choosing the letters she couldn't hear before and playing them over and over again.
I caught her placing her hand over her mouth to "feel" the "t" sound and she delighted in finally hearing it... Finally understanding the sounds I was making when I'd put her hand to my mouth when she wasn't understanding me.
She is adjusting to hearing herself speak but doing so well! Even the sound of her footsteps seems to delight her and she stomps around the house. When morning comes and I hold up her hearing aids, she laughs and runs to me saying "yeah... Pupo fend... Elp ea-uh"
Yes, my darling girl, purple friends help your ears...
I love that she hears her name. I love that when I whispered "Mommy loves you" by her ear, that she actually heard me! Such a simple thing but as a parent, you know how much you want your children to KNOW you love them, not just by action but by the comfort of your voice, too.
I thank God almighty for His guidance, for a gut instinct and a pediatrician who listened. For a brilliant little girl who fights for life with her one kidney and her special ears!
In addition to audiology, we are being referred to SMD (society for Manitobans with disabilities), Ears-Nose-Throat Specialist, and Genetics. Perhaps we can get a better idea of WHY and exactly WHAT is going on.
For her heart murmur, we see a cardiologist in January.
For her one kidney, we were at Nephrology in mid-December and her blood pressure
readings these last few months are in the 50th percentile so they are happy. She has grown well and her blood and urine samples came back looking good. Her one kidney is offering 99.9% overall kidney function! We praise our heavenly Father for this blessing. We also celebrate the fact that we don't have to return to nephrology for a whole year! At which point they'll do another ultrasound of the kidney.
Thank you for uniting with us in prayer. We cherish our babies so much and while my heart aches some days at the challenges my babies seem to face, I rejoice at their strength and love for life.
I love you all so much and thank you for being there.
Many of you are parents. Therefore you know the pain of witnessing helplessly your own child's suffering. It is deep, it is solemn, it is humbling. But how does one describe being witness to their child rising above that suffering to rejoice in life? Well, you know me... I am never short on words, so here's my attempt at describing watching our darling Sivana discover the difference in what her God-given ears can hear with the help of some "purple friends".
Sivana's purple hearing aids have opened her to a whole new world! The molds fill the outer ear cavity and the devices themselves loop over the ears. Both the molds and hearing aids are Sivana's favourite colour... Purple.
When the audiologist put them in her ear, Sivana was tolerant (as the audiologist has stuck many different devices in her ears for all the tests performed so this was nothing out of the ordinary). Sivana was sitting on my lap when the audiologist turned the hearing aids on. She then spoke to me and Sivana immediately whipped her head up to look at the lady in surprise. I laughed and she immediately whipped her head around to look at me with just as much surprise. I asked her "Sivana, can you hear mommy?" to which she immediately replied with awe, "yeah!" I signed the following while speaking: "Sivana... Purple friends help your ears to hear. Do you like purple friends?" Again she replied "YEAH!!"
These last few days, she has been singing, playing her iPod game called Starfall which has all the alphabet and their phonemic sound and she has been choosing the letters she couldn't hear before and playing them over and over again.
I caught her placing her hand over her mouth to "feel" the "t" sound and she delighted in finally hearing it... Finally understanding the sounds I was making when I'd put her hand to my mouth when she wasn't understanding me.
She is adjusting to hearing herself speak but doing so well! Even the sound of her footsteps seems to delight her and she stomps around the house. When morning comes and I hold up her hearing aids, she laughs and runs to me saying "yeah... Pupo fend... Elp ea-uh"
Yes, my darling girl, purple friends help your ears...
I love that she hears her name. I love that when I whispered "Mommy loves you" by her ear, that she actually heard me! Such a simple thing but as a parent, you know how much you want your children to KNOW you love them, not just by action but by the comfort of your voice, too.
I thank God almighty for His guidance, for a gut instinct and a pediatrician who listened. For a brilliant little girl who fights for life with her one kidney and her special ears!
In addition to audiology, we are being referred to SMD (society for Manitobans with disabilities), Ears-Nose-Throat Specialist, and Genetics. Perhaps we can get a better idea of WHY and exactly WHAT is going on.
For her heart murmur, we see a cardiologist in January.
For her one kidney, we were at Nephrology in mid-December and her blood pressure
readings these last few months are in the 50th percentile so they are happy. She has grown well and her blood and urine samples came back looking good. Her one kidney is offering 99.9% overall kidney function! We praise our heavenly Father for this blessing. We also celebrate the fact that we don't have to return to nephrology for a whole year! At which point they'll do another ultrasound of the kidney.
Thank you for uniting with us in prayer. We cherish our babies so much and while my heart aches some days at the challenges my babies seem to face, I rejoice at their strength and love for life.
I love you all so much and thank you for being there.
Tuesday, 4 December 2012
Ethan on IV antibiotics
I just wanted to let u all know I took Ethan to Children's emergency tonight. His eye has been oozing for a week but swelling since yesterday along with fevers. You know it's not good when u walk into emerg and the waiting room is packed but they bring u straight in! It appears to be a skin infection around the eye along with a red nasty left ear. IV antibiotics for two days. He was so brave despite being poked three times before finding cooperative vein. And nothing makes things better than stopping at the firehall to tell dad all about his "adventure".
Sent from my iPhone
Thursday, 18 October 2012
Inner Ear and Inner Strength

So we finally went to see the pediatrician and I asked for a referral to audiology. Thankfully she took my concerns seriously and Sivana was seen today.
We spent an hour in tests and Sivana did brilliantly. Different devices hooked to her ears, various speakers used around the room, probes behind and in her ears... she took it all and despite having just turned two, was able to use the methods of testing for age groups 3 and up (said the proud mama!). Sure enough, by the end of all the tests, all methods showed consistent results that Sivana has mild/moderate hearing loss and will require hearing aids in both of her ears. Because the hearing loss is in the inner ear, it is permanent. Thankfully, they had a device that showed WHAT Sivana hears so I was able to better understand the severity of her deafness.
When the technician said mild/moderate, I figured it wasn't too bad, but when she showed me a regular conversation between a man and woman under normal hearing conditions and then under Sivana's conditions, I couldn't hold back the tears... I could barely understand anything that was said and it was as if I had my hands over my ears. All those times we thought she was being disobedient... she just couldn't hear us!
The other aspect to this is the fact that the inner ear develops in utero at the same time as kidneys and reproductive organs. Whatever happened during that gestational stage, it clearly affected her kidney(s) (hence the multidysplastic kidney) and now also her inner ears... I am praying fervently that the Lord safeguards her womb.

I don't know what the good Lord has in store for our Sivana, but please unite with me in prayer that He bless her womb, whatever that may look like. Nephrology clinic warned that this was a possibility and that we would begin tests when she is a bit older. Only time will tell.
The good news, my dear family and friends, is that the technician was greatly impressed with Sivana's ability to communicate given the severity of her hearing loss. Thank you Signing Time!!! We are back in four weeks for more tests and fittings for hearing aids. We pray that the transition to hearing absolutely everything (particularly in this house) is not overwhelming for her.
Her heart murmur is also something the doctor wants to further investigate so we are also being referred to a heart specialist. I asked the Lord for exceptional children and He gave me exactly that!
Thank you for your support and for uplifting our precious girl in your thoughts and prayers. I love you all so much.
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